Liz Salmi on obtaining her records for the first time after being tested for brain cancer. ‘Seeing the notes was eye opening. I had no idea that this was the way my doctor saw me.’
From Liz on behalf of patients: Do the following (addressed to operational leaders and CMIOs)
1. Do get us on the portal
2. Do teach us about settings on the portal. because, look at this inbox burden on a patient with frequent radiation treatments.
3. Don’t assume what my preferences are. Make it easier.l to find and change settings. Immediate delivery? Once a day summary?
4. Do make sure to make Shared Access easy (what some called proxy access, which is confusingly named). It is really hard right now.
5 do offer guidance on test results.
Do tell patients about open notes. but don’t assume they are reading your notes.
Do add a thank you button.
How about a score on thumbs up for my doctor on my thank you.
Why aren’t all patients like Liz? There is a reason she is the @lizarmy.
