Ethics Grand Rounds: The Ethical Issues with Open Notes and Open Results (CT Lin @ uchealth)

Hear about: Anticipatory Guidance, Cancer Diagnoses revealed online, Risk of marginalization, the Ethics of Ethics notes, and more…

Here’s a link to our University of Colorado, Anschutz Medical Campus, Ethics Grand Rounds with our topic: Ethical Issues with Open Notes and Open Results.

Thanks to all who participated; a robust conversation about the value of information transparency, leavened with concerns about worsening disparity for the digital divide, language and cultural barriers, the unintended disclosure of bad medical news, other unintended consequences of immediate transparency to progress notes and results.

For example: A medicine service is treating a patient. There are suspicions that there may be domestic violence at home. Team calls “Ethics consult: shall we call Adult Protective Services before the patient returns home from hospital?” Should this note be shown to the patient / family? Could a family member gain access to this note which then CREATES a problem when none existed before?

This and more!

The Pyramid of Possibility: explaining informatics to others

Use this to explain to your colleagues that some requests are easy and others might just be impossible.

Have you ever been asked by a colleague: “Hey, wouldn’t it be great if Epic could just do ___ ?”

Some recent examples from my life:

  • Show me my last progress note so I don’t have to hunt for it (Yes, it does that, right here in the Story Board, I can show you in 2 minutes).
  • Find all the open appointments to put a patient into a provider’s schedule, quickly at a glance (Yes, Epic top tool bar: Provider Calendar does that)
  • Remind me of the pre-op scrub protocol (Yes, we can build that into an order set but you have to develop consensus, that will take YOU weeks of discussion)
  • Fund a Sprint EHR optimization team to teach everyone efficient work tools (sure, took me 2 years of convincing leadership to invest in a Sprint team)
  • I want to bill insurance for responding to online messages WITHOUT a co-pay (Welllll, you’ll need to change Federal and Medicare rules, so that will be YEARS TO NEVER).

Yes, we know our colleagues have great ideas and they’re well intentioned, but only IT and informatics people have a sense of what it will REALLY TAKE. So, I made this pyramid to show people, examples of how an tiny, itty-bitty, innocent request can turn out to be nearly nothing or an ENORMOUS MONSTER.

https://www.dropbox.com/s/b6a7dn1hix5kf6j/2022%20EHR%20Pyramid%20of%20Possibility%20CTL.pdf?dl=0

CMIO’s take? Hope you like it and maybe find it useful. Did you make a better version? Let me know!

Epic EHR webinar with UCHealth: Inbasket Re-invention: did we really delete 12 million messages?

Yes. Yes, we did.

https://userweb.epic.com/Webinar/View/7968/Taming-the-In-Basket-with-UCHealth-Teaching-an-Old-Dog-New-T/

Are you and your organization struggling with:

  • How to tackle the hyperobject that is the EHR inbasket?
  • Does your legal/compliance team worry that deleting messages is bad idea?
  • Do you have users with tens of thousands of unread inbasket messages?
  • Are you having trouble getting starting on this ambiguous, massive effort?
  • Would you like to know some of the specific settings and decisions we made?
  • Are you concerned that it is difficult to measure improvement with inbasket?
  • Are you eager to see CT Lin and team fail at yet another ambitious but ill-fated project?

If so, you =might= find some answers in our recorded discussion above.

We touch on: leadership, governance, organizational change, legal concerns, specific Epic EHR inbasket settings and decisions, clinician burnout, high-performing teamwork, and human connection. Really.

Note: Hosted by Epic. Login to Epic Userweb required. Go watch it, then come back and tell me what you REALLY think.

Sepsis, Machine Learning and the Centaur (my SMILE conference talk)

Find out: What is a centaur and what does it have to do with healthcare? What are the criteria for a good machine learning project? What is the role of a virtual health center with predictive models? And most importantly: What ukulele song goes with machine learning?

Here are the slides for my talk given at SMILE (Symposium for Machine learning, ImpLementation and Evaluation). The slides are mostly self-explanatory. You can also watch my talk at YouTube. Here is a PDF of the entire deck.

Predictive Algorithms Save Lives Sepsis @uchealth: A 5-slide talk

This data dilettante (see previous posts: dilettante #1, dilettante #2) has enjoyed armchair theorizing with all of you, my best (online) friends. Today we explore how our super-smart team scrambled our way to improving sepsis care with a predictive algorithm we built.

The old saying goes: the success of any major project in a large organization follows the 80:20 rule. 20% of the work is getting the technology right, and 80% is the socio-political skill of the people doing the work.

We all underappreciate this fact.

It turns out that we spent months building a sepsis alert predictive tool, based on various deterioration metrics, and a deep analysis of years of our EHR data across multiple hospitals. We designed it to alert providers and nurses up to 12 hours BEFORE clinicians would spot deterioration.

We patted ourselves on the back, deployed the predictive score in a flowsheet row, and in the patient lists and monitoring boards, with color coding and filters, and stepped back to revel in our glory.

Right?

Nope.

Turns out that our doctors and nurses were ALREADY FULLY BUSY (even before the pandemic) taking are of critically ill patients. Adding YET ANOTHER alert, even with fancy colors, did NOT result in a major behavior shift to ordering IV fluids, blood cultures, or life-saving antibiotics any quicker.

Hmph.

See the fancy patient-wearable tech on the left (Visi from Sotera, in this case), and one of our hardworking nurses, with ALL of our current technology hanging off her jacket and stethoscope. She should be the visual encyclopedia entry for “alert fatigue.” 😦

(right: one of our overburdened hardworking nurses, image used with authorization)

Back to the drawing board

As result of our failure, we huddled to think about transforming the way we provided care. It was time to disrupt ourselves. We decided to implement a Virtual Health Center, mimicking what we had seen in a couple places around the country: we deployed 2 critical care physicians and about a half-dozen critical care nurses on rotation, off-site at an innovative, award-winning Virtual Health Center.

This second time around, we created a cockpit of EHR data and predictive alerts to the VHC clinicians, who were dedicated to watching for deterioration across ALL our hospitals, and responding quickly. This does several things:

  • Takes the load off busy front line clinicians
  • Creates a calm environment for focused, rapid response
  • Dramatically improves the signal-to-noise ratio coming from predictive alerts

This way, the VHC nurses view all the alerts, investigate the chart, and contact the bedside nurse when the suspicion is high for sepsis, and start the sepsis bundle immediately.

Soon, by tweaking the ways our teams worked together, we were able to reduce the burden on bedside nurses and physicians and simplify handoffs.

See chart above: Before the VHC, bedside nurses were responsible for detecting sepsis (infrequent, subtle signals during a busy shift with lots of loud alarms for other things), with many ‘grey box’ tasks, as well as ‘magenta box’ delays.

After implementing the VHC, the VHC nurses took over the majority of ‘green box’ tasks, reducing the bedside ‘grey box’ work and completely eliminating ‘magenta box’ delays.

As a result, we have dropped our “time to fluids” by over an hour, and “time to antibiotics” by 20 minutes, which we estimate has saved 77 more lives from sepsis each year.

CMIO’s take? Predictive analytics, data science, machine learning, call it what you like. This is a paradigm shift in thinking that requires disrupting “business as usual” and is hard, but rewarding work. I can’t wait to see what we all can achieve with these new tools.

My Failure Resumé (a talk)

What lessons can we learn from CT Lin’s failures?

Thanks to the Colorado Chapter of HIMSS (Health Information Management Systems Society) and to Bonnie Roberts and Rich Morris for co-hosting my presentation.

Based on my recent Failure Resumé 1 pager. Here are some personal stories, life lessons, and 3 exercises to help you build a failure-tolerant future.

With, of course, a bonus ukulele song at the end.

CMIO’s take: Have you written a failure resumé? Are you building a failure tolerant future? Let me know in the comments.

I can see clearly now, my Sprain is gone (ukulele)

Thanks to my collaborators on the Patient Radiology Image Viewing team at UCHealth: Evan Norris MD, Ciarra Halaska, Justin Honce MD, Peter Sachs MD, and Kate Sanfilippo. Come see our talk at Epic XGM 2021 (eXpert Group Meeting) next month! Session Rad 1.4

What’s the TL;DR? Allowing patients to view their radiology images in their patient portal, alongside their radiology reports, is technically feasible, and does NOT cause increased anxiety for patients or increased workload for providers (in fact, ZERO phone calls, and yet our patients view 39,000 images per month!). Eighty percent of patients liked it. Many showed their images to their providers, some saved copies, some posted on social media! Some had technical difficulties, some had trouble understanding the images.

It is a good start, but there is more work to be done!

Wanna know more? Here is our pre-print publication.

CMIO’s take? It is wonderful to work on teams with great colleagues in the service of better, more transparent patient care.

Dr. CT Lin’s Covid-19 advice for patients. KOSI 101 and Mile Hi Magazine

In the link below, it is the interview from April 12, 2020.

https://kosi101.com/mile-high-magazine-public-affairs/

I had the pleasure of being interviewed by Mile Hi Magazine last week in regards to questions about how patients can cope with Covid-19 at home.

I responded to such questions as:

  • So many people contract but recover, is this what our body is designed to do?
  • Can people determine whether they have the virus without a test on symptoms alone?
  • When contracted, quarantine is the first step. What’s next in terms for two weeks – nutrition, special foods to eat to help the immune system fight?
  • Any special foods we should be eating now to be in top immune condition should we contract?
  • Any over-the-counter medicine to take for the fever or diarrhea?
  • Should people change out bed linen during the two-three weeks period?
  • Once fever breaks, is this a key sign that its over?
  • Should people exercise while body is fighting the infection?
  • Once over, should person we wait a couple days to ensure no symptoms return?
  • If Covid-19 is a flu strain, will it mutate into another strain as flu does each season for next winter?
  • Anything else you feel is pertinent to help people feel they can get over it if infected.

I made one particular point at the end of the interview. I shared our family’s strategy for coping with the anxiety and stress during this pandemic:

  1. Exercise every day
  2. Play or make music every day
  3. Limit yourself to 30 minutes of news or social media daily
  4. Three Good Things. At dinner each of us discusses THREE THINGS we are grateful for, today. INSTEAD of our natural tendency to focus on the negative, this exercise helps us reframe our day in a positive light.

CMIO’s take? I challenge all of us to do THREE GOOD THINGS with our loved ones at dinner every night.

UCHealth: ‘Most Wired’ level 10!

Uncomfortable-looking author

We are incredibly honored and humbled to be awarded Most Wired level 10 by CHIME: the College of Healthcare Information Management Executives.

We were one of the three organizations, out of thousands applying, to be awarded level 10, indicating the highest achievement in superior performance and process for information technology used to improve clinical care. This is the first year that CHIME separated out the awardees into levels 7, 8, 9, and 10.

See my last blog post for some of the details of our presentation at CHIME and some of the projects contributing to our success.

It was humbling to stand by the CIOs from Cedar Sinai and Avera Health to receive the honor. Link to article from CHIME below.

CHIME Posts 2019 Most Wired’s Awards and Recognition List

What I said in my acceptance comments, and I stand by them:

At UCHealth, Clinical and IT excellence arises from Partnerships:
1. Partnership between the CIO and CMIO and our teams. We make each other better than we could be alone.
2. Partnerships between UCHealth and our vendor partners: we know that there are more smart people who DON’T work for us, than who do.
3. Partnerships between UCHealth and the CHIME community. Healthcare CIO’s are a brilliant lot. We know we stand on the shoulders of giants.
Lastly, we want to pay it forward. More than 3 health systems deserve to be level 10. ALL patients deserve to be treated by a health system performing at its best and we want to see MANY MORE health systems on stage next year.

The End of Secrecy? (a preview of a talk at CHIME19)

I’m at CHIME19 this week: the College of Health Information Management Executives, Fall Forum. Eight hundred Healthcare CIO’s and a growing number of CMIO’s are members. My CIO, Steve Hess and I are giving a talk called “Is this the End of Secrecy in Healthcare?” where we outline our (sometimes) rocky journey toward ever-increasing transparency for our patients.

We know that an informed patient is much more likely to be an engaged patient, and engaged patients have better health outcomes. So, how do we increase the information available to patients? We have to overcome inertia, fear, and sometimes, epithets.

We were interviewed by Kate Gamble of Health System CIO to preview the contents of our talk, see below.

https://healthsystemcio.com/2019/11/01/how-uchealth-is-leveraging-transparency-to-create-a-better-user-experience/

Sometimes we have to look outside of healthcare for our inspiration:

  • OpenTable
  • Travelocity
  • Wikipedia
  • Instagram
  • Yelp
  • 23andMe

Confused? Excited? Freaked out? So were we.

CMIO’s take? Is this the End of Secrecy? Yes. Yes it is.

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