Medicine: the last uncompressed profession? (Liminal MD)

Bryan Vartabedian calls out the idea of “compression” where standard process and measurement have transformed many professions. Yet, medical care at its root is a sick patient that may not fit easily into a measurable box. Healthcare as a profession cannot be compressed. A must read.

Medicine as the last uncompressed profession

The difficult uncompressible work of medicine is unmeasurable. How might we measure “difficult diagnosis”?

What value do we place on the master diagnostician who can sort out many vague complaints into an unexpected diagnosis, when no one else can?

Sure, routine treatment of straightforward diabetes or asthma can be ‘compressed” into measurable process and goals, but “failure to thrive” or “fragile elderly with polypharmacy” or “internal medicine patient with 17 diagnoses who is falling more often” or “undifferentiated severe abdominal pain” doesn’t fit anywhere, can’t be measured, and its care cannot be made more efficient.

Are we training a generation of doctors who are excellent at compressed care? When our older generation of doctors retire, will patients with unmeasurable suffering no longer have someone to care for them?

In all the noise of “Value based care” and “Private Equity” and “squeezing the inefficiency out of the bloated US healthcare industry” where are the quiet ones, the hidden heroes out there caring for patients?

Yes, Generative AI is coming. Yes, EHR tools and “clinical decision support.” Yes, advances in team-based, multidisciplinary, highly coordinated care.

And yet.

Where are the ones championing the statement attributed to Hippocrates:

Cure sometimes, comfort often, care always.

iPhone notes app is the purest reflection of our humanity (Wired.com) and a medical informatics observation

What’s on your notes app in your phone? WIRED argues that this simple, unfiltered blank page is the easiest place for us to store our unfiltered thoughts. How true. For me: fragments of blog post ideas, books I hear about, movies to watch, hilarious quote from family members, messy to-do lists. Hotel room numbers. Parking garage locations. Who knows? What’s on yours?

https://www.wired.com/story/iphone-notes-app-purest-reflection-of-our-humanity/

Sometimes the simplest note-taking apps are the most profound.

As medical records technologists going back to the 1800’s discovered, if we over-engineer our tools, doctors and nurses will break the bounds of what is allowable documentation to let the story come out.

From Annals of Internal Medicine (requires login) a brilliant history of medicine article by Eleanor Siegel

https://www.acpjournals.org/doi/10.7326/0003-4819-153-10-201011160-00012

The image:

What is fascinating is that: in the 1800’s, hospitals began keeping paper medical records, one book for each HOSPITAL WARD of about a dozen patients. No patient-specific medical records. If you wanted to look back, you would find the ward book for the year, find the day the patient was in the hospital, then look for the patient’s name.

Each patient would be an entry on the page for the day. There was only room for ‘intervention’ and ‘outcome’. No place to write thoughts, observations, theories, learnings.

So, doctors would at times turn the page over and use the blank back of the paper to write (in this case):

This patient came in with what appeared to be an apoplectic stroke. He was interesting in that he had a dextrocardia. He later developed a clinical picture which we could not explain.
Diagnosis: Hemorrhage into cerebrum
Complication: ?Syphilis

Do pictures change patient behaviors (James Stein substack)

I don’t often cite other blogs, but this is a worthwhile quick read about changing patient behaviors. Wonderful story about a physicians failure with a patient and the lessons he draws from using a calcium score to try to get a patient to change. Did not go well. And I will change how I think about this as a result.

https://jamesstein18.substack.com/p/do-pictures-change-patient-behaviors

Upcoming UGM 2025 talk: Grow your own PIGlets – and a new ukulele song parody

Grow your own PIGlets! A book club and 1-year curriculum to train newbie informaticists. Come for talk, stay for the ukulele. We will also be polling the audience for their best recommended books, so come back for the crowd-sourced compilation!

This is a preview of an upcoming talk I’ll be giving at Epic’s User Group Meeting on August 20 at 230pm. UGM 254. Thanks to Dr. Jennifer Simpson for co-presenting with me and bringing the data and her own stories. Mark your calendars! Because I’ll be including a QR code to download and review our slides and book club and article recommendations, I’m posting here ahead of time. Enjoy!


In brief, see below for our book club recommendations and articles. I tell some stories from my past failures and learnings. Perhaps my life serves as a warning to others…

And, introducing the Psycho 80, and old, and a new concept.

I look forward to seeing many of you, new friends and old, at Epic UGM!


 

 

The U.S. Surgeon General Has One Last Piece of Advice (Time.com)

What does the Surgeon General have to say for America? Listen up, y’all.

The U.S. Surgeon General Has One Last Piece of Advice | TIME

My Parting Prescription for America (Vivek Murthy MD)

I have always been grateful to Dr. Murthy for his leadership over 8 years as Surgeon General. His stances on

  • Loneliness
  • Parental stress
  • Gun violence
  • Dangers of Social Media

And now, he adds: Rebuilding Community. I love his vision. Rebuilding Community’s core elements are Relationships, Service, and Purpose.

Read the TIME article and Dr. Murthy’s Prescription above.

These principles align closely with our Large PIG (physician/APP informatics group) vision:

“We improve physician and team wellness and effectiveness by building extraordinary relationships, and innovative tools.”

What is remarkable is Dr. Murthy’s style of communication and his use of the bully pulpit / loudspeaker from his position, a clear prescription:

Based on evidence and data, augmented by interviews and connection with front line workers and those individuals affected by isolation, written clearly and without jargon, with a clear call for action.

Let us commit to some action ourselves. What will YOU do to rebuild community? What relationships, service and purpose will you commit to?

Thank you for your service, your advocacy, and your vision, Dr. Murthy.

Q: Who can save us from Social Media? A: Just Us. (Harvard Gazette, Nicholas Carr)

Superbloom: Nicholas Carr’s latest book, is sure to be another mind-blowing read. Sign me up.

Who can save us from social media? At this point, perhaps just us.

Nicholas Carr is a thinker I like to follow. The Glass Cage (reviewed in my recent blog post)  was  a terrific read and, I thought, a critique of my entire professional career.

He’s back and talking about the prevalence of social media and the “technologies of connection” and what it means for us.

This goes on my ever-growing to-read list.

Bookshop.org now sells e-books (Wired.com)

Support independent bookstores over the big tech amazon store! I can’t wait to give them more business locally.

https://www.wired.com/story/bookshop-now-sells-ebooks/

I am encouraged that there are those building public interest alternatives to the tech giants. Yes, I am guilty of purchasing on Amazon.com when I’m in a rush; it is too convenient.

On the other hand, I am very committed to independent bookstores when possible. I buy my Large PIG (physician/APP informatics group) book club books from TheBookies.com  a local bookstore in Denver, where we have purchased our kids books from K-12 and beyond. They happily order 20 copies of “Good to Great” or “Leading Change” or our current book club book: “Design of Everyday Things“.

Now, Bookshop.org is growing and systematically supports independent bookstores by sharing a large portion of their sales and allowing these indies to setup their own storefront.

I even set up my own CMIO book club list here: https://bookshop.org/lists/cmio-book-club

Bookshop.org now includes e-books. Can audio books be far behind? More power to our independents and local businesses. Join me to Fight the Man!

Bill Gates Traumatized his Parents (Wired.com)

Bill Gates, an autobiography. We have lived the last 50 years, from slightly different viewpoints. Are the lessons the same? Different?

https://www.wired.com/story/big-interview-bill-gates-book-autobiography-source-code/

Bill Gates was only a few years ahead of me at Harvard, and he dropped out after his freshman year. And now he is a centibillionaire, retired CEO of Microsoft, and a global philanthropist.

Other than that, he’s just like me and a bunch of other college grads.

Now, he has written the first book of an anticipated trilogy autobiography, which should be a fun read and an origin story at the core of the personal computer revolution.

Happy to read from this article and from his book, about how he terrorized his parents and was a sarcastic wit in school. Having followed his career over the decades, can’t wait to see behind the curtain.

I think all CMIO’s at their root owe some debt of gratitude to his pioneering tech, his career sparring with Steve Jobs at Apple, and the sparks from their works that ignited countless industries, including medical informatics.

I, for one, programmed in MSBasic on an Apple II, bought the first (and almost every subsequent) Mac, used Microsoft Word, Excel, Powerpoint, then Office, searched on Altavista, Yahoo!, used a modem to dial in to bulletin boards, surfed the world wide web in text until the first images arrived, all that.

How might we keep alive the knowledge of where we came from?

Yes, we must look to an AI-enabled, then AI-powered, and perhaps an AI-supervised future, but what lessons must we learn again if we forget?

Machiavelli, “The Spare” and Medical Informatics? A reflection

What does “The Prince”, Prince Harry’s new book, and Medical Informatics have in common?

It is a joy to have a son in college who is still interested in speaking to me, the old fuddy-duddy born in the Last Century. He is attending St. John’s College in Santa Fe, where they study the Great Books curriculum, or as his sister says, “Oh, so you read about ideas from old dead white men?”

Machiavelli

It so happens that his class, which started with Aristotle, has worked their way up past Copernicus (my recent post on changing world-views), and now in the sophomore year, is now reading Machiavelli, perhaps my favorite of the classics, since it so much to say about the challenges of leadership.

Over dinner last week, my son and I discussed what I remembered from reading the Machiavelli’s “The Prince” in our Physician/APP Informatics Book Club (yes, we did), and the quotes that I use almost every week at work.

Why Change is Difficult to Lead

The reason that change in an organization is so difficult, is because at best, your proponents are lukewarm, and your detractors have ALL THE PASSION IN THE WORLD –CT’s recollection of quote

And it should be considered that nothing is more difficult to handle, more doubtful of success, nor more dangerous to manage, than to put oneself at the head of introducing new orders. For the introducer has all those who benefit from the old orders as enemies, and he has lukewarm defenders in all those who might benefit from the new orders… The lukewarmness comes from the incredulity of men, who do not truly believe in new things…  –Original text from Machiavelli

How to Manage Bad or Good News

If you have to manage change that people will like, be sure to do it a little at at time and take credit for every improvement, to sustain the atmosphere of good will. If you have to manage a change that people will NOT LIKE, do it all at once. In fact, hire someone to make that change, and, at the end, when they are very unpopular, BEHEAD THEM. Problem solved.
–CT’s recollection.

For injuries must be done all together, so that, being tasted less, they offend less; and benefits should be done little by little so that they may be tasted better.
–Original Text from Machiavelli

Application: we have a new committee, EMO (electronic medication optimization) where we are learning to remove low value medication warnings (eg: multiple stimulants in one med list – many patients have more than one Adderall pill strength needed for the right dose). Suppressing such alerts that are 90% overridden, is a benefit. Every time we reduce clicks, we Broadcast it. Take credit for every reduction, every improvement.

On the other hand, when there is something ‘bad’ we must change, we do it all at once. We have to wipe out physicians’ old radiology order preferences in order to install new radiology orders that incorporate secure chat buttons and more effective routing. DON’T get rid of them piecemeal (they will hate you every time you make a change) rip off the bandaid all at once and remove ALL the preference lists and start fresh instead. ONE painful change. But, the ONE event fades faster in memory than many smaller changes. (Yes, I know that CT Lin ruined healthcare, regardless of what he chooses).

Close readers of the blog will remember that our book club also read Leading Change and also Buy-In by John Kotter. Really practical advice on tackling the sticky issue of how to set up important changes for success.

How to Build Consensus

Back in 2009 when I invented APSO notes (a future post) I had difficulty convincing colleagues to switch to a different format of document. In brief, SOAP notes are how docs have written standard notes for 70 years. APSO puts the assessment and plan, the most important part, at the top for increased speed and readability.

However, I had failed. In our EHR (Allscripts Touchworks at that time) I made APSO a selectable option next to standard SOAP notes. Result? 16% adoption rate, even among my close friends and colleagues.

I had an opportunity in 2011 for a platform change (we were adopting Epic) and I had a committee meeting to see if I could get APSO as the default standard.

Machiavelli teaches us that, if you don’t already know how everyone will vote at an important meeting, you have not done your work.

In brief, I made 30 minute appointments with EVERY influential medical director in that 30-member meeting to discuss APSO, answer their questions and in some cases do some horse trading (this for that) to gain support. Took a couple weeks to do this ground work, for this crucial decision.

Result? I achieved consensus at the meeting. APSO notes were the default (and for a time the ONLY) format available in our new Epic EHR. Thanks, big M.

Spare

This brings us to Prince Harry. I recently listened to his book “Spare”. I had not followed the royal drama closely, and did not know that Spare was a disparaging name for himself, in contrast to “The Heir” Prince William, as in “there’s the Heir, and there is the Spare.” How awful. See last week’s blog post (below).

One presumes that the Royal education includes the reading of The Prince, for modern princes.

One also presumes that palace intrigue, public scrutiny, the fickleness of public opinion, all weigh heavily, magnified to searing intensity by social media and paparazzi (what would Machiavelli say about paparazzi?).

Similarly, those leading projects in large health systems must contend with large populations, difficulty communicating effectively, rumor, innuendo, opposing viewpoints, resistance to change (but perhaps, not paparazzi).

Medical Informatics

To bring these threads together, one sees ancient and modern examples of leadership, managing communication, remembering that smart humans lived many years ago and wrote down their ideas. It is up to us to learn history or be doomed to repeat it. Remembering my personal failures, my 16-year journey to Open Notes, my nearly-failed plan to implement APSO notes, and now our struggles to deploy, maintain, study and improve Open Results, these innovations have all been guided, in some way by Machiavelli.

CMIO’s take? Who is the historian in your leadership group? Who reads the literature, learns from the past, and gives your teams perspective? How do you ensure a diversity of opinion, of thought? How do you challenge and disrupt yourselves to avoid complacency? I worry about this all the time.

Prince Harry’s Spare (book review) and a CMIO’s reflection

Prince Harry’s autobiography is an enjoyable listen. For all the swirl about the Royal family, I almost never follow the Royal Family in the news. I was curious about Harry and Megan’s leaving the Royals and moving to Los Angeles, and so I was intrigued. And, I saw him on Late Night with Stephen Colbert. Here are the bare bones of salient facts:

  • William and Harry are sons of Princess Diana and Prince (now King) Charles
  • Diana died in a car crash after divorcing Charles, pursued by paparazzi
  • Paparazzi behavior, driven by newspaper and tabloid money in England, ultimately funded by the British public’s insatiable interest in the Royal family, is nearly unbelievable, and replete with examples of criminal behavior, as recounted by Harry and others.
  • Being in a Royal fishbowl can be intolerable and could and does prompt members to turn on each other.
  • Under the spotlight, everything is magnified: simple individual actions (or even inaction) can be interpreted as super popular or super villainous. Whatever sells papers.
  • Human behavior and relationships are difficult in any family. Under the public microscope it can be unimaginably difficult

The narrative on its own is an enjoyable listen. Harry narrates his own story from childhood growing up in the castle, losing his mom, being the Queen’s favorite, through a rebellious adolescence, into the military, training and flying missions as an Apache pilot, serving in Iraq and Afghanistan, meeting Megan, courting her, and ultimately leaving the Royal family.

I will not judge him for his actions or his writing. We all have limited skills in our relationships, coping skills for our pressures, joys in our pleasurable moments, grief in our catastrophes. It is too easy to ‘look over there’ and critique someone else’s life, not knowing the back story.

Too, it is easy to read an autobiography, adopt the authors views, and sense that everyone else must be evil.

CMIO’s take? I have lots of conflicting emotions about this, and find lots of parallels working with and leading humans in a large organization. I notice that my reactions are a litany of emotions, and less an intellectual response. And yet…

  • Most everything said is a viewpoint. Take them with a grain of salt
  • It is too easy to judge. Turn the judgement back on yourself when you feel it. Do you really know, for example, what it is like to live in a castle pursued by drone-wielding and motorbike-riding paparazzi, and loved ones suicidal from the aggressive hounding, having lost your mother, whose death was directly related to being pursued by those same individuals? What traumas are we each seeking to leave behind, ourselves?
  • The range of human experience is astounding. Sometimes just appreciating that is enough
  • What lessons on egotism can I learn from this? What lessons on brotherliness? On parenting? On collegiality? On grit? On grief? On anxiety? On empathy? What blind spots does this bring up?
  • Prince Harry is the Spare, the denigrating term for the second son who is not ‘The Heir’. This microcosm of an extreme situation, even if written as a grievance, an explanation, can tell us so much about ourselves, about myself.
  • For this, Prince Harry, Duke of Sussex, I am grateful.